Nate was also seen and we got a lot of things rolling with him! On the 8th Nate will have an Upper GI & barium swallow study and see the speech pathologist. On the 18th of January he will also be seen by the dysphagia clinic and possibly another FEES test. We will figure out where he stands with his reflux/GERD and what meds he needs to be on now. They will find out if everything is as it should be structurally and if there are other sensory issues. He is maintainig his weight but he is barely on the chart. So, while we have to wait until January, we are one step closer to finding out answers that will improve the quality of life he has now and later.... He is such a character. He was showing off in the doctor's office and I thought the med student was going to fall off the chair when Nate winked at him. He was dancing and waving and just having a great time! The doctor came in with a santa hat on and he backed up towards his dad but waved and was so funny to watch him watch the doctor trying to figure out if he is friend or foe I am sure! :) We went to Applebees and he heard an 80's rock song he has been known to dance to at the house come on and he held out his hands to Kailee and me and we had to hold his hands so he could dance in his high chair. He just brightens up everyday and we have so much fun with this little man... and he is a little man... he's like this giant of a man inside a little body and he is constantly making us laugh!
He took a drink of rootbeer right before Kailee told him to wink so he was trying to wink with a mouth full of pop! And Kailee and Nate always have to cheese for the camera!













1 comment:
I am so glad they finally figured out what might help Kailee live more comfortably. There is nothing worse than being in pain ALL THE TIME.
Nate is just a cutie pie...I cannot believe how big he's gotten and how grown up he looks.
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