I never knew how much love a heart could hold, until they called me mom

Saturday, December 12, 2009

Kailee needs a nose job, and other ENT news...

We have been teasing Kailee since her appointment about getting a nose job... but it's not really that simple and I am sure it won't be fun! She will be getting a nose job, but it is to fix a septum that is so deviated it looks like a hook inside! For years we have been with constant sinus infections and headaches... she has now had 4 CAT scans for them... however while the doctor here wanted to jump into surgery telling us that she MUST have sinus surgery or never get better, we just didn't feel right about his diagnosis and felt even worse about him as a doctor after several people warned us to not let him touch her! We finally got into an ENT at Primary Children's. He wanted to do an aggressive treatment of antibiotics to make sure that her sinus infection was really cleared up so we could get an accurate view of her sinuses, and he also scoped her and found out she has severe reflux with years of damage... no other doctor even mentioned that was a possibility even when she was seen for symptoms that we now know were reflux. After her visit he took her down to get a CAT scan... the stars were lined just right that day, they fit her in within 5 minutes of being there and minutes later we were back at the doctor's office waiting to see the results. Her sinuses are perfect! The problem is that her septum is hooked so badly deep inside that her one side is completely blocked. Her options are... spend the rest of her life miserable, uncomfortable and dealing with chronic sinus issues because of the blockage, or get it fixed! He says that often it will reduce the number of migraines she has also, which would be a big plus!!! He referred her to his associate who does this type of surgery more often and is his specialty so we will see him on January 8th and get this going!

Nate was also seen and we got a lot of things rolling with him! On the 8th Nate will have an Upper GI & barium swallow study and see the speech pathologist. On the 18th of January he will also be seen by the dysphagia clinic and possibly another FEES test. We will figure out where he stands with his reflux/GERD and what meds he needs to be on now. They will find out if everything is as it should be structurally and if there are other sensory issues. He is maintainig his weight but he is barely on the chart. So, while we have to wait until January, we are one step closer to finding out answers that will improve the quality of life he has now and later.... He is such a character. He was showing off in the doctor's office and I thought the med student was going to fall off the chair when Nate winked at him. He was dancing and waving and just having a great time! The doctor came in with a santa hat on and he backed up towards his dad but waved and was so funny to watch him watch the doctor trying to figure out if he is friend or foe I am sure! :) We went to Applebees and he heard an 80's rock song he has been known to dance to at the house come on and he held out his hands to Kailee and me and we had to hold his hands so he could dance in his high chair. He just brightens up everyday and we have so much fun with this little man... and he is a little man... he's like this giant of a man inside a little body and he is constantly making us laugh!

He took a drink of rootbeer right before Kailee told him to wink so he was trying to wink with a mouth full of pop! And Kailee and Nate always have to cheese for the camera!

We finally snapped the picture in time to catch 'the wink'....
Checking things out...
Showing off while we were waiting to be seen by the doctor!
Thought he was so cool for stealing his dad's hat....
He's obsessed with his dad's blackberry and looks like he even knows what he is doing with it!
Messing with Kailee in the office...
He thought this was a seat made just for him!
The blackberry again...
Kicked back and waiting for his turn to be seen...
He found the play list...
Dancing...

1 comment:

PapillionMom said...

I am so glad they finally figured out what might help Kailee live more comfortably. There is nothing worse than being in pain ALL THE TIME.
Nate is just a cutie pie...I cannot believe how big he's gotten and how grown up he looks.