I am still just so frustrated with the health care we are getting. I love our pediatrition, but she is a hometown ped who specializes in just that... pediatrics. So this specialized care is a little out there. They ask if I have another tube. Another tube??? Is this something I should be packing around? And nobody has the adhesive remover so that we don't have to pull skin off from the tape. They don't even have the tender grips to hold the tube in place under tegaderm tape. They called every medical supply store in town. Nobody has one!!! She called Dr B at Primary's and they said that they could use the old one since it had only been in a week. I go over to radiology and they get us in and start inserting it under x-ray. Of course he is not happy and is thrashing around. I was sick to my stomach watching and trying to hold him. Finally the tech tells me that it's curled in his stomach. I said, "Great, but it's an NJ tube and can't be in his stomach." They asked ME where it was supposed to be. HUH? So I told them. They ask me if I have the wire thing that is with the new tubes so it can be placed properly. LOOK............. do I look like a medical supply store??? NOT! If I had it all I am pretty sure I would have offered it up. So they had to go looking to find what they need. Finally it is in place only what do we do to tape it down???? Seriously, this is what they ask me!!! I told them just to give me some tape to temporarily get me out the door and home and I would take care of it.
But, for a few precious moments he was tube free. Cute as a bug and without any trace of a problem. So Kailee and I were snapping pictures on the cell phones in the doctor's office. Hyrum and Kami thought it was great and were up on the table with him giving him loves and kisses without that darn old tube! Oh I can't wait for the day when he is tube-free for good. He is such a precious little man and I want nothing more than to nurse him and pack him around and be, well...just normal. Whatever that is!!!











